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Frequently Asked Questions

This is
an exciting time. Society is beginning to realize that most
children with
Down syndrome learn better when taught alongside typically
developing kids.
Including children with disabilities in regular
education, with appropriate classroom supports, enriches the
learning experience for all children.
- Kids have questions
- Parents have questions
For parents, "those" kids weren't in our classes
when we went to school, so we don't have much information about
their unique gifts and challenges.
What is Down syndrome?
Why do some people have Down syndrome?
Why is it called Down syndrome?
Will the Down syndrome go away?
Why can't my friend with Down syndrome talk very
well?
Can people with Down syndrome Learn?
Do people with Down syndrome grow up?
Do people with Down syndrome have feelings?
Why does my friend with Down syndrome act
differently than other kids?
Can I help my friend?
What is it that UPS for DOWNs is trying to
accomplish?
What is Down syndrome?
Down syndrome is something that causes differences in the way a
person looks and learns. No two people with Down syndrome
are quite the same, but they are often extra flexible in their
joints, have eyes that slant, have small ears and a small nose,
and grown more slowly than other kids. People with Down
syndrome also tend to learn more slowly than others.
Why do some people have
Down syndrome?
People with Down syndrome are born with one extra chromosome in
some or all of their cells. Chromosomes contain the
directions that tell your body how to grow. These directions
tell your body what color your hair and your eyes will be, how big
your nose will be, whether you will be a good singer and many
other things. When a person has an extra chromosome, it
mixes up their body's directions a little. This is why
people with Down syndrome look a little different and have to try
harder to learn. No one knows why some babies are born with
Down syndrome, but we do know it is nobody's fault.
Why is it called Down
syndrome?
A doctor names John Langdon Down was the first to write about this
condition. It is not called Down syndrome because we should
be "down" or depressed about it.
Will the Down syndrome go away?
No. Down syndrome is not a sickness.
Most people with Down syndrome are very healthy, although nearly
fifty percent are born with heart defects, most of which are
corrected by surgery.
You cannot "catch" Down syndrome. The only
way to get Down syndrome is to be born with it..
Why
can't my friend with Down syndrome talk very well?
Many people with Down syndrome have trouble learning to talk.
Many little kids first learn to communicate by using their hands
in sign language. Kids with Down syndrome also benefit from
having a teacher help them learn to talk (a speech and language
pathologist), but the best teachers are other kids.
If you know a person with Down syndrome and you
don't understand them, ask them to repeat themselves or to show
you what they mean. Just because a person with Down syndrome
doesn't talk to you, doesn't mean they don't want to be your
friend. They may just need extra time and extra help.
Can people with Down Syndrome learn?
Yes! People with Down syndrome CAN and DO
learn, but have to work much harder than others and may need more
time and extra help. Kids with Down syndrome can participate
in all school activities, even though they may not learn
everything.
Do people with Down
Syndrome grow up?
Yes. In adulthood, many people with Down
syndrome have jobs, go to college, live independently and support
their communities. People with Down syndrome bring to their
jobs enthusiasm, reliability and dedication.
Do people with Down Syndrome have feelings?
Yes. Just like everyone, people with down
syndrome have feelings. They can feel happy, silly, sad,
sorry or upset - just like you. People with Down syndrome
enjoy friends and family and can be hurt when someone teases or
makes fun of them - just like you.
Why does my friend with Down Syndrome act
differently than other kids?
People with Down syndrome have difficulty with
language and talking. Many kids want to interact and play
with their friends, but don't know how, are afraid they won't be
understood, or afraid they will be told "no, you can't play".
Some kids with Down syndrome get overwhelmed when too many things
are going on at the same time.
Can I help my Friend?
Yes! Play with and talk to people with Down
syndrome. If they are having trouble playing a game, give
them time and a little extra help or ask them what game they would
like to play. Be clear in what you are saying. Find
out what your friend likes to do. Just hang out together and
see what happens. You are more alike than you are different.
What is it that UPS for
DOWNs is trying to accomplish?
One of the primary purposes of our organization is to
support and connect families and individuals with Down syndrome of
all ages through our various activities. United Parent Support for
Down syndrome has been in existence for more than 20 years.
Over time, this group has provided comfort, information and most
importantly, camaraderie among the families here. |